Support Groups and Donate to Research

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Support Groups

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If you have never joined a support group for your particular condition, it’s a good way to meet others who understand and can relate to your struggles. Before I joined my first odor support group back in 2008, I had never met anybody with my condition. I thought I was one of maybe 2 or 3 other people on the entire planet with it. I was shocked that so many others were suffering as I was. I met a lot of good people there. Plus, I finally found out what was wrong with my body and what I could do to treat the sea_heart_nature_landscape_flowers_love_romance_54126_300x188problem. Whatever your condition, this is a list of support groups you may be interested in.

For those with my particular rare condition, here is a list of odor support groups. Maybe you’ll want to join more than one.

Odor:

https://www.rareconnect.org/en/community/trimethylaminuria/forum 

https://groups.yahoo.com/group/Trimethylaminuria

http://www.experienceproject.com/groups/Have-Trimethylaminuria/91387

http://www.patient.co.uk/support/trimethylaminuria-support-group

http://www.curezone.org/forums/f2.asp?f=441

All Support groups:

https://www.rareconnect.org/en/community/trimethylaminuria/forum 

Loneliness: 

https://loneliness.supportgroups.com/

Down’s Syndrome:

http://www.bandofangels.com/Resources/Directories/SupportGroups/

Paralysis:

http://www.supportgroups.com/sg/depression/paralysis

http://www.dailystrength.org/c/Paralysis/support-group

Mentally Challenged:

http://www.dailystrength.org/c/Mental-Retardation/support-group

http://ddsn.sc.gov/consumers/advocacyorgs/Pages/MentalRetardationSCSupportGroups.aspx

Missing Limbs:

http://www.new-horizons.org/dspamp.html

http://www.dailystrength.org/c/Amputees/support-group

People With Hearing Loss:

http://www.hearingexchange.com/blogs/?p=435

http://deafservices.utah.gov//?s=deaf+support+groups

How to donate to TMAU research:

My chronic odor condition is known as trimethylaminuria (TMAU). This is a link to donate to TMAU research for better treatments and someday a cure. The link takes you directly to the MEBO TMAU website donation page. Once there, simply click on Donations at the top of the page.

http://meboresearch.org/

If you have a different condition, maybe you’ll want to find out how you can donate for better treatment and a cure for it. Every cent helps.

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